Grants and funding opportunities for Rare Diseases Research

The disease may be “rare” but the funding does not have to be.

Search for funding with this curated view of rare disease funding opportunities or search all funding with the GRANTguide.

The Marfan Foundation

Posted: September 28, 2022

Innovator Award (Marfan syndrome worldwide)

Recipient citizenship:

Global

Host location:

Global

Full application due:

October 26, 2022

Osteosarcoma Institute

Posted: September 28, 2022

2023 Translational Studies (osteosarcoma)

Recipient citizenship:

Global

Host location:

Global

Letter of intent due:

November 15, 2022

Full application due:

April 14, 2023

The Marfan Foundation

Posted: September 27, 2022

Career Development Award (Marfan syndrome worldwide)

Recipient citizenship:

Global

Host location:

Global

Full application due:

October 26, 2022

Osteosarcoma Institute

Posted: September 27, 2022

2023 Clinical Trials Grant (osteosarcoma)

Recipient citizenship:

Global

Host location:

Global

Letter of intent due:

November 15, 2022

Full application due:

April 14, 2023

Osteosarcoma Institute

Posted: September 26, 2022

2023 Correlative Studies Grant (osteosarcoma)

Recipient citizenship:

Global

Host location:

Global

Letter of intent due:

November 15, 2022

Full application due:

April 14, 2023

The Orphan Disease Center

Posted: September 14, 2022

Orphan Disease Center Million Dollar Bike Ride Pilot Grant Program (worldwide)

Recipient citizenship:

Global

Host location:

Global

Letter of intent due:

September 16, 2022

Full application due:

October 17, 2022

The Desmoid Tumor Research Foundation (DTRF)

Posted: September 8, 2022

2023 Early-Career Investigator Grant (desmoid tumors USA)

Recipient citizenship:

Global

Host location:

USA

Letter of intent due:

March 14, 2023

Full application due:

April 25, 2023

The Desmoid Tumor Research Foundation (DTRF)

Posted: September 7, 2022

2023 Desmoid Tumor Research Grant (USA)

Recipient citizenship:

Global

Host location:

USA

Letter of intent due:

March 14, 2023

Full application due:

April 25, 2023

Fanconi Anemia Research Fund (FARF)

Posted: September 7, 2022

Research Grant Awards (Fanconi anemia)

Recipient citizenship:

Global

Host location:

Global

Rolling submissions

Jain Foundation

Posted: August 31, 2022

Research Grant for Dysferlinopathies (LGMD2B and Miyoshi Myopathy)

Recipient citizenship:

Global

Host location:

Global

Rolling submissions